GP at hand Research

Why is GP at Hand taking part in research?

GP at Hand believes in improving the health of our patients and of the wider population. Being part of clinical research allows us to contribute to medical advances that can find new ways to prevent, detect or treat disease. Being part of research allows us to help improve the health of the individual and also the health and wellbeing of the wider UK population, both today and for future generations.

Why should I take part?

The National Institute for Health Research has developed a website explaining why as a patient you may wish to take part in research. More information can be found here:

https://www.bepartofresearch.nihr.ac.uk/taking-part/why-take-part/

How will I be contacted?

The practice may contact you by post, telephone or text message asking if you would like to participate in research. You are under no obligation to participate.

How do I opt-out?

If you would like to opt-out from receiving this information please fill in our contact form and we will ensure that this is clearly marked and you will not receive any information about research in the future.

Do I have to take part/will it affect my care if I don’t?

No, you do not need to take part and if you decide not to. It will not affect the quality of your care or your relationship with your GP or the practice.

If you are eligible and do decide to join a clinical trial, you may withdraw at any time. Research teams will also notify us of the results of any investigations they undertake such as blood tests or scans and will keep us fully informed for the duration of any trial.

Will you give/sell my personal data to other companies?

No. We do not sell or give other companies your data. We will always seek your consent should there ever be a need to provide your personal data outside of Babylon (e.g. if you move away from GP at Hand). We will only run searches of our patient’s notes to identify groups for clinical trials, we will then write to advise you about a clinical trial that may be of interest and how to contact the research team if you are interested or would like more information. These research companies and teams do not know who has been sent a letter unless you decide to contact them.

For more information about how your data is used visit www.cprd.com/public and https://cprd.com/privacy-notice.

For more information on Babylon GP at Hand’s approach to data protection in our Privacy Policy.

Clinical Practice Research Datalink

Information in patient records is important for medical research to develop new treatments and test the safety of medicine. GP at Hand practice supports medical research by sending some of the information from patient records to the Clinical Practice Research Datalink (CPRD).

CPRD is a Government organisation that provides anonymised patient data for research to improve patient and public health. You cannot be identified from the information sent to CPRD.

Will my data be anonymised?

Yes. CPRD never receives information that identifies patients and will only provide anonymised health data to approved researchers. Your confidential information is protected in the following ways:

You cannot be identified from the information sent to CPRD from your GP practice.
CPRD never receives identifying details, such as your name, address, NHS number, date of birth or medical notes.
Data can only be used for research to improve patient and public health CPRD must obtain. annual ethics and governance approvals to collect and supply data for research.
Researchers must comply with strict terms and conditions to use anonymised CPRD data for research.